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HUSH supports application for feasibility study of the drug Eculizumab

5th October 2014

HUSH has supported an application for a feasibility study of the drug Eculizumab, for HUS sufferers.

The drug is currently being successfully used for sufferers of a similar illness called aHUS.

This application is supported by medical and public health experts who believe that this drug could be helpful for sufferers of HUS.

The funding application for this study to the National Institute of Health Research is at a very early stage of the process.

The application is lead by Dr Sally Johnson a Consultant Paediatric Nephrologist at Great North Children's Hospital Newcastle and is supported by Paediatric Nephrologists in England, Wales & Scotland.

If the feasibility application & study is successful it is hoped that a trial of the drug will be carried out on HUS sufferers.

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Another complaint to the Information Commissioner's Office about the UK Health Security Agency (UKHSA).

9th September 2024

As you are aware, this matter relates to a complaint to the ICO with regard to the UKHSA’s failure to respond to my request for information, made under FOIA, dated 1st July 2024. ... ...read on

The Information Commissioner’s Office now has to decide if the UK Health Security Agency were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157

13th August 2024

The Information Commissioner’s Office (ICO) now has to decide if the UK Health Security Agency (UKHSA) were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157 from lettuce and salad leaves... ...read on

Confirmed cases rise again to 288 in STEC O145 outbreak from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps.

5th July 2024

Confirmed cases rise again to 288 in STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps. ... ...read on

Confirmed cases rise to 275 and one person sadly dies due to STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce).

27th June 2024

The UK Health Security Agency (UKHSA) stated in their press release of today 27... ...read on

Confirmed cases in E.coli O145 outbreak from salad leaves (lettuce) in sandwiches and wraps rise to 256 and may rise further.

21st June 2024

According to an update yesterday the 20th June 2024 from the UK Health Security Agency (UKHSA) ,the number of confirmed ... ...read on

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HUSH supports application for feasibility study of the drug Eculizumab