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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment.

The trial will only include patients who are under the age of 18.

When these young people are considered for the trial their parents will be given sufficient written information etc to ensure they can make an informed choice before they decide if they want to participate. (If the patient is 16 to 18 they will also be given the information themselves).

As a charity, we support the trial and are co-applicants on the basis that, at the present time there is no specific treatment known to help reduce the severity that some sufferers of Haemolytic Uraemic Syndrome (HUS) can experience. We do not know whether or not it will work but are encouraged that this drug has been shown to be successful when used for a similar condition known as aHUS.

We appreciate that this is a difficult decision for parents to make when their child is ill, but we wish them well in whatever choice they make.

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Confirmed cases rise again to 288 in STEC O145 outbreak from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps.

5th July 2024

Confirmed cases rise again to 288 in STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps. ... ...read on

Confirmed cases rise to 275 and one person sadly dies due to STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce).

27th June 2024

The UK Health Security Agency (UKHSA) stated in their press release of today 27... ...read on

Confirmed cases in E.coli O145 outbreak from salad leaves (lettuce) in sandwiches and wraps rise to 256 and may rise further.

21st June 2024

According to an update yesterday the 20th June 2024 from the UK Health Security Agency (UKHSA) ,the number of confirmed ... ...read on

Two suppliers of Supermarket sandwiches and wraps recall products as a precaution after E.coli O145 outbreak. Reported cases rise to 211.

14th June 2024

Two suppliers of Supermarket sandwiches and wraps recall products as a precaution after E.coli O145 (Shiga toxin-producing Escherichia coli often referred to as ... ...read on

The UK Health Security Agency (UKHSA) declares E.coli (STEC) Outbreak

6th June 2024

The UK Health Security Agency (UKHSA) has advised of a large outbreak of Shiga toxin-producing Escherichia coli (STEC) O145, that currently appears to be spreading across the UK. This follow... ...read on

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E.coli O157 & Haemolytic Uraemic Syndrome

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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.