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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment.

The trial will only include patients who are under the age of 18.

When these young people are considered for the trial their parents will be given sufficient written information etc to ensure they can make an informed choice before they decide if they want to participate. (If the patient is 16 to 18 they will also be given the information themselves).

As a charity, we support the trial and are co-applicants on the basis that, at the present time there is no specific treatment known to help reduce the severity that some sufferers of Haemolytic Uraemic Syndrome (HUS) can experience. We do not know whether or not it will work but are encouraged that this drug has been shown to be successful when used for a similar condition known as aHUS.

We appreciate that this is a difficult decision for parents to make when their child is ill, but we wish them well in whatever choice they make.

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UKHSA letter of 26/09/2024 rejecting a FOI request for publication of the report into a large outbreak of STEC O157 in 2022, on the grounds of public interest?

8th October 2024

By email steve@ecoli-uk.com ... ...read on

Another complaint to the Information Commissioner's Office about the UK Health Security Agency (UKHSA).

9th September 2024

As you are aware, this matter relates to a complaint to the ICO with regard to the UKHSA’s failure to respond to my request for information, made under FOIA, dated 1st July 2024. ... ...read on

The Information Commissioner’s Office now has to decide if the UK Health Security Agency were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157

13th August 2024

The Information Commissioner’s Office (ICO) now has to decide if the UK Health Security Agency (UKHSA) were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157 from lettuce and salad leaves... ...read on

Confirmed cases rise again to 288 in STEC O145 outbreak from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps.

5th July 2024

Confirmed cases rise again to 288 in STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps. ... ...read on

Confirmed cases rise to 275 and one person sadly dies due to STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce).

27th June 2024

The UK Health Security Agency (UKHSA) stated in their press release of today 27... ...read on

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E.coli O157 & Haemolytic Uraemic Syndrome

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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.