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Trial of Eculizumab for HUS approved

26th December 2015

The trial for the drug Eculizumab for HUS sufferers has been approved. The study is known as the ECUSTEC. The drug is currently being used by aHUS sufferers. The Charity welcomes the trial which will start in 2016 as it is hoped that it will help improve the outcome for sufferers of HUS. To date there has been no specific treatment.

The Charity is one of the co-applicants for the drug based on the fact that there has been no such treatments previously. Whilst only time will tell whether or not the drug will work, we can only hope that it will be beneficial long term for such sufferers. The trial will take several years to complete.

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UK Health Security Agency fail again to give a set publication date into 2022 outbreak of E.coli O157 where there were 259 confirmed cases. Information Commissioner to investigate complaint.

22nd December 2024

UK Health Security Agency By email ste... ...read on

UKHSA fail again to respond to FOIA correspondence within 20 working days, this time to carry out an internal review or their reasons for any possible delay.

5th November 2024

This Freedom of information request is in relation to the publication date for an outbreak report of E.coli O157 in 2022, where there was 259 reported cases from consuming salad products. ... ...read on

UKHSA letter of 26/09/2024 rejecting a FOI request for publication of the report into a large outbreak of STEC O157 in 2022, on the grounds of public interest?

8th October 2024

By email steve@ecoli-uk.com ... ...read on

Another complaint to the Information Commissioner's Office about the UK Health Security Agency (UKHSA).

9th September 2024

As you are aware, this matter relates to a complaint to the ICO with regard to the UKHSA’s failure to respond to my request for information, made under FOIA, dated 1st July 2024. ... ...read on

The Information Commissioner’s Office now has to decide if the UK Health Security Agency were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157

13th August 2024

The Information Commissioner’s Office (ICO) now has to decide if the UK Health Security Agency (UKHSA) were correct in handling a new Freedom of information request about the 2022 outbreak of E.coli O157 from lettuce and salad leaves... ...read on

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Trial of Eculizumab for HUS approved