ecoli-uk.com

E.coli O157 & Haemolytic Uraemic Syndrome


Give aHUSUK your online backing

28th February 2013

aHUSUK, the patient support group (for those whose HUS is not as a result of E.coli infection) would like you to support their latest online petition.  They are calling for Health Ministers to approve funding  for a National Specialised Service  and the use of Eculizumab for aHUS patients without delay.

At the moment the Health Minister wants to delay implementation of the recommendation by asking NICE to complete a duplicate assessment, thus  prolonging the wait for patients whose lives could be saved or transformed by this drug.

http://epetitions.direct.gov.uk/petitions/46252 - (No longer available)




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