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aHUS support group calls for backing

18th September 2011

A support group for sufferers of the rare atypical haemolytic uremic syndrome (aHUS), are calling on the Government to commission a national specialised service for treatment, to fund treatment with complement inhibitors such as eculizumab, and ensure that these services and therapies are available to all patients who need them.

Eculizamab has now been proven to stop the blood complement process which causes the damage to the kidneys and other organs following an episode of HUS. This gives hope to those aHUS patients on dialysis because they will have the opportunity to have a kidney transplant previously denied them because their aHUS condition would recur and destroy the kidney graft. Also it means that future sufferers can be treated with eculizamab before HUS causes the more serious outcomes.

An e-petition has been created at http://epetitions.direct.gov.uk/petitions/16053 and it would be of enormous help to aHUS patients if as many of you would sign by clicking on the link.

If you want to know more about aHUS a website has been developed at www.aHUS.org.uk

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Confirmed cases rise again to 288 in STEC O145 outbreak (Shiga toxin-producing Escherichia coli) from what is thought to have been caused from salad leaves (lettuce) in sandwiches and wraps. ... ...read on

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Two suppliers of Supermarket sandwiches and wraps recall products as a precaution after E.coli O145 outbreak. Reported cases rise to 211.

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Two suppliers of Supermarket sandwiches and wraps recall products as a precaution after E.coli O145 (Shiga toxin-producing Escherichia coli often referred to as ... ...read on

The UK Health Security Agency (UKHSA) declares E.coli (STEC) Outbreak

6th June 2024

The UK Health Security Agency (UKHSA) has advised of a large outbreak of Shiga toxin-producing Escherichia coli (STEC) O145, that currently appears to be spreading across the UK. This follow... ...read on

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E.coli O157 & Haemolytic Uraemic Syndrome

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aHUS support group calls for backing