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29th October 2017
The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitmen.... read article
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Trial of Eculizumab for HUS approved
26th December 2015

The trial for the drug Eculizumab for HUS sufferers has been approved.  The study is known as the ECUSTEC.  The drug is currently being used by aHUS sufferers.  The Charity welcomes the trial which will start in 2016  as it is hoped that it will help improve the outcome for sufferers of HUS.  To date there has been no specific treatment.  

 

The Charity is one of the co-applicants for the drug based on the fact that there has been no such treatments previously.  Whilst only time will tell whether or not the drug will work, we can only hope that it will be beneficial long term for such sufferers.  The trial will take several years to complete.


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29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitmen.... read
23rd October 2017

The above petition by HUSH and in conjunction with UNISON has now reached 100,000 signatures. The aim of the petition is to let the Food Standards Agency know a.... read
28th February 2017

Research carried out by the Observer newspaper and the Bureau of investigation published earlier this month, reveals that in 323 abattoirs audited in England, W.... read
4th January 2017

On 14th December, we attended a drop-in session in Parliament, organised by Unison, where more than 20 members of the House of Commons and Lords came to support both Unison and ourselves in keeping.... read
22nd October 2016

.... read
16th May 2016

This trial is known as the ECUSTEC trial as a reference to the drug (ECU) combined with the condition that can cause HUS (Shin.... read
26th December 2015

A few months ago we were contacted by some people we know at War and Want who wanted to make a video on The Trans A.... read
26th December 2015

The trial for the drug Eculizumab for HUS sufferers has been approved.  The study is known as the ECUSTEC..... read
26th September 2015

Sam Pallet has kindly sent us her experience of suffering from  E.coli and HUS.  Sam's story highlights that initial diagnosis still very poor. Thankfully Sam was transferred to the Derby.... read
26th August 2015

Clive Roberts from Lancing recently sent us his personal story about his near death experience after suffering from E.coli. This shows how serious suffering from such bacterium can be and that prev.... read
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